Goal kicking 4 years on!

Photo by Farid Askerov on Unsplash

It occurred to me that I’ve just hit my ME/CFS anniversary and I think it’s safe to say that I’ve kicked it to the curb! This past year has been filled with a bit of goal kicking and it’s not stopping anytime soon! Yeooow!!!

Four years ago, I can still vividly remember how my health went downhill fast.  The first year was the hardest, I barely had wins and as much as I tried to keep positive it was hard.  I held onto goals and put up pictures of things that symbolised my goals. I convinced myself that I would achieve these goals one day…….even though at the time, it seemed hard to believe. I held onto the idea and kept it for when I needed it the most.

Finally, I have achieved a number of these goals. I am extremely proud, to say four years on I am celebrating and smashing my goals! The hard work has paid off and most of all, the illness is no longer ruling my world.

A huge victory is that I am heading to South America in a few days, yep you heard right!!! It’s literally days away. South America became a long-term goal of mine when I become unwell. Most of my close family and friends know this and probably got sick of me saying one day I’m going to go when I get better! Haha well that day has finally arrived and I am pinching myself! I really can’t believe it has arrived.

It is very random how it all came about, it happened to be in my very early days of my illness. At the time, the doctors still didn’t know what was wrong with me.  I was trying to keep positive throughout the whole ordeal and I decided to make an inspiration board of what I was going to do or work towards when I got well enough. The picture of Machu Picchu came to me, I had no desire to visit it before. But that image of Machu Picchu stuck with me and I thought to myself ” I’m going, when I’m well enough.”

And it’s been with me ever since.

City2surf is another big thing that I have been working towards, which I’m excitedly fit enough for. City2surf is happening in August which I am excited to be competing in the event and I have also been fundraising for it. The charity I have chosen to fundraise for is emerge, they are an Australian based charity that dedicates themselves to raising awareness and funds to research for ME/CFS.

Returning to work and working like a normal person would, was another big goal. DONE! This also includes other living “like a normal person” life goals again. DONE!

My next ass kicking goal will be a tough one and means heading back to school! Bring it on!

It’s not until you lose something, that really puts things and life into prospective for you.

Any way my friends it’s time for me to love and leave you, I need to go pack!

Can’t wait to tell you all about my South American adventure.

Much love

Lennae xxx

Photo by Abraham Osorio on Unsplash


Bringing on 30 with Adventure!!!

Photo credit- Eagle rock adventures

Photo credit- Eagle rock adventures

 

Bringing in my 30th birthday like yeeoooooowwwwww!!!!

When I became unwell with ME/CFS aka Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (nearly 4 years ago), life as I knew it was no more and I was fighting for my health like I never knew I would have too. Fast forward to now and after a few years spent bed/ house bound, I am now pretty much well enough to live an active life at my normal pace.

So bringing in my up and coming 30th birthday with a bang, sounded like the only way to bring in a milestone birthday.

I’ve been pining over Machu Picchu, it’s the one thing that I have held onto and told myself I would do once I recovered from ME/CFS. I have hoped and planned to get there this year, the year I turned 30 and fortunately my hard work with my health has paid off. After months of planning, tantrums, talking myself out of it, then talking myself back into it.  I can confirm that myself and darling husband (bless him for putting up with this decision making process) booked for my birthday and recovery dream of course. My much awaited trip to Machu Picchu, in less than 5 months time!

Whoohoo, I am literally pinching myself!!!

Lets embrace adventure! My big goal is happening, so I am one happy lady. But come the day I turned 30 and the adventure didn’t stop there. Cameron took on board that adventure was on the cards, so he organised for us along with my younger brother to go canyoning.

Ummmmm……what’s canyoning? Yeh I had no idea! Let me tell you…….

Canyoning is an adventure sport where you endure a mixture of activities like abseiling, hiking, rock climbing, rock sliding and jumping through a water canyon.

Sounds a little extreme, climbing down waterfalls, jumping off rocks and plunging into fresh water holes and sliding down big rock surfaces!

Extreme? Maybe a little…..but fun? Absolutely!

We went with a Sydney based tour group called Eagle Rock adventures, they were wonderful guides. They fed us, were extremely helpful and kindly took a bunch of photos on our behalf as smartphones weren’t really ideal to take.

The canyon we ventured through was located in the Macquarie pass rain forest.  It was absolutely beautiful. I love rain forests and getting amongst nature is always good for the soul. We also saw bit of wildlife where we went, as we were off the beaten track. We saw a wallaby, huge lizards, frogs and a snake that was happily hanging out near the water keeping a close eye on us.

This adventure was an all day event, the weather was super hot, but the rain forest kept us nice and cool. The water was beautiful and fresh, I could have stayed in it all day.

I can honestly say it was so much fun, challenging and rewarding all at the same time. There’s nothing like staring down the rock face and feeling your heart racing as you think to yourself “OMG what the hell am I doing?! “This s**t’s way too high!”

Your adrenaline kicks in and then you start abseiling down the rock surface like a boss (or what you think’s like a boss). You’re only going snail pace, but hey your giving it a go and YOU’RE DOING IT and that’s all that matters my friends!!!

With that my friends, I will love and leave you. If you want to check out our Canyoning footage, check out the link below. GoPro was worn by Cameron!

Bye for now and embrace your inner adventure!!

Lennae xxx

 

 

Photo credit - Eagle rock adventures

Photo credit – Eagle rock adventures

 


Wrapping up 2016 and Bringing on 2017!

Photo credit @a.m_banks- Instagram

Photo credit @a.m_banks- Instagram

Welcome to 2017….. Where on earth did 2016 go!!!

I know I’m a little late to the party, but I can’t help myself I love wrapping up a year that’s passed and looking forward to the beginnings of a year ahead! I don’t know about you guys, but a new year just brings a whole lot of exciting and endless possibilities!!!

Although I can’t say I have completely recovered from ME/CFS (Myalgic encephalomyelitis/ chronic fatigue syndrome) I am more functional and active than what I have been in a long time. 2016 was a good year for me, my health turned it up a notch and showed me that my days with ME/CFS are becoming more like it was all just a bad dream.

Throughout 2016 I did have a few issues with my health, but they ended up not being ME/CFS related. How good is that!
2016 showed me a normal and active life, that I am more than welcoming back. I was able to work my way up to working 15 hours a week and maintain that. I will increase the hours more at some stage, but right now I am happily enjoying this work life balance. I also enjoyed a bit of travelling, going interstate, as well as heading over to Singapore off on a cruise. I remember feeling on the cruise like I wasn’t a sick person (how amazing is that). I was also studying some of last year, however I did have to place my studies on hold. I hope to continue them at some stage, possibly in a years time. Putting my studies on hold allowed me time to complete my main goal of returning to work and also allowed me to focus more on my fitness. Which Snowy and I have been loving!

Anyway enough about 2016, we are now in 2017!!!

Whoohoo, bring it on!!!

This year one of my main goals that I will achieve, is dedicated to when I first became unwell. When I first became unwell in 2013, I could barely move. At the time all I could do was lay in bed or on the couch. I did a lot of soul searching and googling online about ME/CFS and came across mostly negative stories. This did not help my frame of mind, I needed something positive. I had no idea when I would get better or how long it would take. However I needed something to look forward to. I decided to make a vision board, it was something I hung on my wall, where I looked every day and helped when I wasn’t feeling the best (which at that stage was everyday). My vision board consisted of destinations that I wanted to visit and stuff that I wanted to be doing once I finally started to get better. The one thing that stuck out to me however was Machu Picchu. I have no idea why, it just did. I decided when I was finally well enough and able too I would go there someday. Thankfully my beautiful friends I am well enough to get my butt over to that amazing place and show ME/CFS who the boss is now!!!

To some it may not seem like a big deal, but to someone that has been suffering with a chronic illness it means having your life back. Suffering from a chronic illness is hard work, but recovering from one is even harder. Achieving your goals is rewarding, here’s to a year full of achieving your goals and setting new ones.

Have a happy 2017 my friends! I hope you all have a fantastic year ahead, sending lots of love, hugs, spoons and positive vibes your way.

Lennae xxx

Photo credit @a.m_banks- instagram

Photo credit @a.m_banks- instagram

Photo credit @a.m_banks- instagram

Photo credit @a.m_banks- instagram


Pineapple & Ginger Smoothie

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This delicious pineapple and  ginger smoothie is a great morning starter, that will help jump start your day. The health benefits of ginger will help with any aches and pains and getting that digestive system working. Enjoy this refresher, but watch out for that ginger kick!

 

Ingredients

2 cm piece of Ginger
2 Cups of Coconut water
1 Tbsp Flax-seed meal
2 Cups of Pineapple
1 Banana
2  Celery sticks

Garnish with a slice of pineapple and a celery stick. 

 

Chop pineapple, banana and celery into small pieces.  Remove skin from ginger and add into a blender with the rest of the ingredients. Blend ingredients until smooth. Pour smoothie into glasses.  Garnish with a slice of pineapple slicing the middle and sliding it onto the glass, add a celery stick into the drink. Enjoy!

 

Serves 2, time required 10 minutes.

 

 

 

 

 

 

 

 

 

 


Walking with ME

Walking with a view, Woonona beach, NSW.

Walking with a view, Woonona beach, NSW.

During the early days of my illness with ME/CFS (Myalgic encephalomyelitis/ Chronic fatigue syndrome) moving proved to be very difficult, my body was weak and heavy. I’m in my third year of recovering with ME/CFS and here is how I have managed to get moving again. Please note that although I have found this to help me, it may not be ideal for you. Everyone is different and this illness affects everyone differently.

When my doctor referred me to an exercise physiologist to help with my recovery, I was confused and didn’t understand why… “how could I exercise if I could barely hold myself up?”  This being my only option from my doctor, I went and gave it a go.

At the exercise physiologist I was given a couple of exercises and was told to start walking, this sounded like pure torture. I did want to get better, which meant I was willing to give anything a go.

The exercises I did off and on, but the walking I have kept and maintained since day one.  I started off with a walk down my driveway; to the mailbox and up and down 2 small flights of stairs. That was me done! I struggled up the stairs, while breathing heavily. Gradually I started shuffling a 5 minute walk to the beach. It was literally two blocks away and took me 10 minutes to get there. I started this walk with someone each time,  I was too scared to go by myself  and scared that I would fall over and be too weak to pick myself up if I ever needed to. I would stop when I got to the beach and get a chai latte. Usually I would need to rest for around half an hour before  heading back again. When I got confident I started do this walk on my own, I remember the first time I was out on my own and I was shuffling along and an elderly man passed me, I was so disheartened. The old me would have lapped that elderly man, twice!

I started to walk around 2 – 4 times a week, this become the highlight of my day and even week.  I would look forward to it, it became good for my physical health and mental health. If I could manage a small walk on my struggle day’s, then that was something and something is better than nothing. There were days where I didn’t want to do it though deep down I knew that if I got out into the fresh air I would feel better for it and I always did.

I remember one occasion I was having a bad day, I was feeling down and had no motivation to face my walk. I was mentally struggling and it was late in the afternoon. I thought to myself I need to do this walk today, I got myself together and slowly made my way down to the beach. When I finally got there, I ordered my chai latte, sat down and looked out over the ocean. I was rewarded with the beautiful sight of whales splashing around in the distance. I was so happy and proud that I had made it down, it was such an amazing reward.

After almost a year of this, things got easier and we moved into a different area.  We lived close to some shops that were under a 5 minute walk. I would walk up there, run an errand or two, have a chai latte and sit down then walk back when I was ready. Gradually I didn’t need to sit down and rest, I would find that I would be walking around for 20 – 30 minutes easily.

That’s when I took on a new challenge of walking Snow. We only had her for a few months, after a bit of walking practice around the backyard.  I started to feel comfortable walking her. We started our walks and got into a habit of walking 2 – 3 times a week, walking around a few streets in the area that would take me around 20 – 30 minutes depending on how I was.

When I returned back to work I had to make sure not to push things. Usually when I went for a walk it would be on my days off and the walk would range from 20 – 30 minutes. I took her on longer walks when we would go to the beach, they were always at a strolling pace. Beach walks were good to add in as the terrain is a bit harder to walk on. This helped build strength, we would bring Snow along to the beach and I started off by walking a quarter of the way and then back. Every-time I would go, I would assess how I felt and then turn around and walk back. Eventually after doing this for just over 24 months I made it to the end and back comfortably.

I have managed to build up a solid pace from the shuffle that I use to do back in my earlier days.  I now can complete regular walks weekly ranging from 2 – 5 times a week. I always assess how I am each day and during the week, if it feels like too much then that’s ok, I limit what I do.

I recently completed my first walking event since illness, it was 6 km’s and I completed it in 54 minutes (click here for details). My goal is to complete CITY2SURF I did it back in 2012 and loved it, due to illness I haven’t been able to do it since. It’s 14 km’s, fingers crossed next year is my year for it!!!

I believe walking can help on so many levels, do you enjoy walking or find helpful at all? Have you noticed any progress over time with your walking? I would love to hear all about it!

Lennae xxx

Walking and resting,

Walking and resting.

Snowy and I at the 3k Million Paws walk 2015.

Snow and I at the 3k Million Paws walk 2015.

We love walks when this is the view, East Corrimal, NSW.

We love walks when this is the view, East Corrimal, NSW.

Snowy in her element.

Snow in her element.

Walk selfies at the park.

Walk selfies at the park.


Just a Casual 6 KM Walk at RUN WOLLONGONG!

Walking with a view.

Walking with a view, City beach, Wollongong.

For a long time now I have been patiently waiting for my body to cooperate and say “yep I’m ready to move it and be active again!”

I have maintained regular walking throughout my illness with ME/CFS (Myalgic encephalomyelitis/ Chronic fatigue syndrome). In the beginning it started off with only walking to the mail box, because at the time, that was all I could manage. Over time I have increased accordingly to what I could manage, slowly but surely I have made progress with this.

This brings me to where I am today….. Today I entered into the Run Wollongong running event and registered myself into the 6 km walk. Yep it was a little scary to think that I was taking on normal active life again, but also amazingly brilliant that I was at this point where it was an option and I didn’t have to worry about my illness or symptoms of getting in the way of it all.

Cameron and my Dad joined me, Cameron entered himself to run the 12 km race and Dad walked the 6 km race with me. It was a beautiful morning, the sun was out, blue skies where upon us and the temperature was warm. A lovely light breeze swept through towards the end of the race, which helped with keeping cool.

Proudly I can say that I kept a fast pace up throughout the whole course, finishing towards the front of our group. I felt completely in my element! I have always enjoyed walking and right before my illness, I had started to get into walking/ running events.  I have been longing to get back into living an active life for a while and it feels fantastic to be able to do this sort of thing again! Thanks body, thanks for working with me! Whoohoo!!!

Celebrations were called for and we made a pit spot at a healthy cafe that I had been wanting to try out. I celebrated with a Acai bowl!

Every proud moment or milestone is always worth celebrating! Do you have any proud moments or milestones that you should be celebrating? Make sure you celebrate them!

Much love

Lennae xxx

 

 

Start line fun.

Start line fun.

 

6 KM walk group photo.

6 KM walk group photo.

Free fresh fruit to re-fuel with after the race. A great idea!!!

Free fresh fruit to re-fuel with after the race. A great idea!!!

6 KM's done, Whoohoo!!!

6 KM’s done, Whoohoo!!!

Acai bowl celebrations!

Acai bowl celebrations!

 


Road Trippin

 

 

Eden Wharf, NSW.

Eden Wharf, NSW.

 

Over the  long weekend, the Mr and I decided to road trip down to Melbourne.  I was pretty excited about the roadie, though after a full on week I was also a little concerned as to how I would pull up. I wasn’t planning to take time off for the trip but long journeys can tend to wipe me out. After a good night’s sleep I still felt a bit exhausted, mentally and psychically. However after a little pep talk and the realisation that it would probably still be good for me to get away, I got myself sorted and we were good to go. We also had Mr spoon joining us (for more about Mr Spoon click here), he had arrived into my possession only a couple of days earlier from his previous road trip (he gets around).

Our journey went via the scenic route, cruising down the coast of NSW stopping in Eden for the first night (the bottom of NSW). Keeping an eye out at Eden for whales while enjoying the gorgeous views. What I love about Australia is that there are so many beautiful coastal towns, each one just as gorgeous as the next.

We then headed down to Victoria hugging the coast as much as possible enjoying the beautiful national parks along the way, I love a good national park. We stopped off at a couple of spots along the way and enjoyed a nice walk and then ended the day in Yanakie, which borders Wilson’s Promontory National Park. The next day involved exploring Wilson’s Promontory National Park and enjoying another lovely walk. We also got to drive on the most southern road on mainland Australia. After a bit of National park exploring, we headed to Melbourne, cruising through rural Victoria and ending my part of the trip in Melbourne. Rural Victoria, the Gippsland region reminded me a lot like where i’m from in New Zealand, loads of sheep, cows, farmland and  lush green grass.  All up a total distance of driving  was just over 1100 km (not by me of course)!

Some delicious food was eaten and I think those country Victorians definitely give Melbournians a good run for their money when it comes to good food. I sensed there was a bit of competition in that area.

After spending a lovely night in Melbourne and conquering the square glass floor up the Eurka tower (it’s one way to test my fear of heights), I flew home the next day and managed everything just fine. It’s moment’s like this, that remind me that only not too long ago I wouldn’t have been able manage any of this, mentally, emotionally or physically!

Wowee it feels good to be living life and enjoying the simple things! Bring on life!

Sending lots of love and positive vibes to you all, do you have a road trip planned anytime soon? I’d love to hear about it!

Much love,

 

 

Lennae xxx

Mr Spoon whale watching in Eden.

Mr Spoon whale watching in Eden.

Rotary look out, Eden.

Rotary look out, Eden.

Cape Conran, Victoria.

Cape Conran, Victoria.

Cape Conran, Victoria.

Cape Conran, Victoria.

Birdies at Tidal River, Wilson's Promontory National Park.

Birdies at Tidal River, Wilson’s Promontory National Park, Victoria.

Over looking Bass Strait, Wilsons Promontory National Park, Victoria

Over looking Bass Strait, Wilson’s Promontory National Park, Victoria.

South bank, Melbourne.

South bank, Melbourne.