Wrapping up 2016 and Bringing on 2017!

Photo credit @a.m_banks- Instagram

Photo credit @a.m_banks- Instagram

Welcome to 2017….. Where on earth did 2016 go!!!

I know I’m a little late to the party, but I can’t help myself I love wrapping up a year that’s passed and looking forward to the beginnings of a year ahead! I don’t know about you guys, but a new year just brings a whole lot of exciting and endless possibilities!!!

Although I can’t say I have completely recovered from ME/CFS (Myalgic encephalomyelitis/ chronic fatigue syndrome) I am more functional and active than what I have been in a long time. 2016 was a good year for me, my health turned it up a notch and showed me that my days with ME/CFS are becoming more like it was all just a bad dream.

Throughout 2016 I did have a few issues with my health, but they ended up not being ME/CFS related. How good is that!
2016 showed me a normal and active life, that I am more than welcoming back. I was able to work my way up to working 15 hours a week and maintain that. I will increase the hours more at some stage, but right now I am happily enjoying this work life balance. I also enjoyed a bit of travelling, going interstate, as well as heading over to Singapore off on a cruise. I remember feeling on the cruise like I wasn’t a sick person (how amazing is that). I was also studying some of last year, however I did have to place my studies on hold. I hope to continue them at some stage, possibly in a years time. Putting my studies on hold allowed me time to complete my main goal of returning to work and also allowed me to focus more on my fitness. Which Snowy and I have been loving!

Anyway enough about 2016, we are now in 2017!!!

Whoohoo, bring it on!!!

This year one of my main goals that I will achieve, is dedicated to when I first became unwell. When I first became unwell in 2013, I could barely move. At the time all I could do was lay in bed or on the couch. I did a lot of soul searching and googling online about ME/CFS and came across mostly negative stories. This did not help my frame of mind, I needed something positive. I had no idea when I would get better or how long it would take. However I needed something to look forward to. I decided to make a vision board, it was something I hung on my wall, where I looked every day and helped when I wasn’t feeling the best (which at that stage was everyday). My vision board consisted of destinations that I wanted to visit and stuff that I wanted to be doing once I finally started to get better. The one thing that stuck out to me however was Machu Picchu. I have no idea why, it just did. I decided when I was finally well enough and able too I would go there someday. Thankfully my beautiful friends I am well enough to get my butt over to that amazing place and show ME/CFS who the boss is now!!!

To some it may not seem like a big deal, but to someone that has been suffering with a chronic illness it means having your life back. Suffering from a chronic illness is hard work, but recovering from one is even harder. Achieving your goals is rewarding, here’s to a year full of achieving your goals and setting new ones.

Have a happy 2017 my friends! I hope you all have a fantastic year ahead, sending lots of love, hugs, spoons and positive vibes your way.

Lennae xxx

Photo credit @a.m_banks- instagram

Photo credit @a.m_banks- instagram

Photo credit @a.m_banks- instagram

Photo credit @a.m_banks- instagram

Just a Casual 6 KM Walk at RUN WOLLONGONG!

Walking with a view.

Walking with a view, City beach, Wollongong.

For a long time now I have been patiently waiting for my body to cooperate and say “yep I’m ready to move it and be active again!”

I have maintained regular walking throughout my illness with ME/CFS (Myalgic encephalomyelitis/ Chronic fatigue syndrome). In the beginning it started off with only walking to the mail box, because at the time, that was all I could manage. Over time I have increased accordingly to what I could manage, slowly but surely I have made progress with this.

This brings me to where I am today….. Today I entered into the Run Wollongong running event and registered myself into the 6 km walk. Yep it was a little scary to think that I was taking on normal active life again, but also amazingly brilliant that I was at this point where it was an option and I didn’t have to worry about my illness or symptoms of getting in the way of it all.

Cameron and my Dad joined me, Cameron entered himself to run the 12 km race and Dad walked the 6 km race with me. It was a beautiful morning, the sun was out, blue skies where upon us and the temperature was warm. A lovely light breeze swept through towards the end of the race, which helped with keeping cool.

Proudly I can say that I kept a fast pace up throughout the whole course, finishing towards the front of our group. I felt completely in my element! I have always enjoyed walking and right before my illness, I had started to get into walking/ running events.  I have been longing to get back into living an active life for a while and it feels fantastic to be able to do this sort of thing again! Thanks body, thanks for working with me! Whoohoo!!!

Celebrations were called for and we made a pit spot at a healthy cafe that I had been wanting to try out. I celebrated with a Acai bowl!

Every proud moment or milestone is always worth celebrating! Do you have any proud moments or milestones that you should be celebrating? Make sure you celebrate them!

Much love

Lennae xxx

 

 

Start line fun.

Start line fun.

 

6 KM walk group photo.

6 KM walk group photo.

Free fresh fruit to re-fuel with after the race. A great idea!!!

Free fresh fruit to re-fuel with after the race. A great idea!!!

6 KM's done, Whoohoo!!!

6 KM’s done, Whoohoo!!!

Acai bowl celebrations!

Acai bowl celebrations!

 

Road Trippin

 

 

Eden Wharf, NSW.

Eden Wharf, NSW.

 

Over the  long weekend, the Mr and I decided to road trip down to Melbourne.  I was pretty excited about the roadie, though after a full on week I was also a little concerned as to how I would pull up. I wasn’t planning to take time off for the trip but long journeys can tend to wipe me out. After a good night’s sleep I still felt a bit exhausted, mentally and psychically. However after a little pep talk and the realisation that it would probably still be good for me to get away, I got myself sorted and we were good to go. We also had Mr spoon joining us (for more about Mr Spoon click here), he had arrived into my possession only a couple of days earlier from his previous road trip (he gets around).

Our journey went via the scenic route, cruising down the coast of NSW stopping in Eden for the first night (the bottom of NSW). Keeping an eye out at Eden for whales while enjoying the gorgeous views. What I love about Australia is that there are so many beautiful coastal towns, each one just as gorgeous as the next.

We then headed down to Victoria hugging the coast as much as possible enjoying the beautiful national parks along the way, I love a good national park. We stopped off at a couple of spots along the way and enjoyed a nice walk and then ended the day in Yanakie, which borders Wilson’s Promontory National Park. The next day involved exploring Wilson’s Promontory National Park and enjoying another lovely walk. We also got to drive on the most southern road on mainland Australia. After a bit of National park exploring, we headed to Melbourne, cruising through rural Victoria and ending my part of the trip in Melbourne. Rural Victoria, the Gippsland region reminded me a lot like where i’m from in New Zealand, loads of sheep, cows, farmland and  lush green grass.  All up a total distance of driving  was just over 1100 km (not by me of course)!

Some delicious food was eaten and I think those country Victorians definitely give Melbournians a good run for their money when it comes to good food. I sensed there was a bit of competition in that area.

After spending a lovely night in Melbourne and conquering the square glass floor up the Eurka tower (it’s one way to test my fear of heights), I flew home the next day and managed everything just fine. It’s moment’s like this, that remind me that only not too long ago I wouldn’t have been able manage any of this, mentally, emotionally or physically!

Wowee it feels good to be living life and enjoying the simple things! Bring on life!

Sending lots of love and positive vibes to you all, do you have a road trip planned anytime soon? I’d love to hear about it!

Much love,

 

 

Lennae xxx

Mr Spoon whale watching in Eden.

Mr Spoon whale watching in Eden.

Rotary look out, Eden.

Rotary look out, Eden.

Cape Conran, Victoria.

Cape Conran, Victoria.

Cape Conran, Victoria.

Cape Conran, Victoria.

Birdies at Tidal River, Wilson's Promontory National Park.

Birdies at Tidal River, Wilson’s Promontory National Park, Victoria.

Over looking Bass Strait, Wilsons Promontory National Park, Victoria

Over looking Bass Strait, Wilson’s Promontory National Park, Victoria.

South bank, Melbourne.

South bank, Melbourne.

 

Singapore Cruising Adventure

Sunset on the Malacca Sea.

Sunset on the Malacca Strait.

Hello beautiful souls, long time no hear!

Apologies for the lack of posts, I’ve been off and on with the online world over the past few months. All has been going well, I actually returned from my cruising holiday over a month ago (I know, so slack that I haven’t posted about this already).

I really want to share this experience with you all. This was a huge milestone for me, filled with a lot of surprises and happy memories to go with it. It’s amazing how well you can cope when you are out of your daily routine and comfort zone. Don’t get me wrong there were a few curves balls, but its part of the experience and how you deal with it at the time. You can either fight it or roll with it.

A good friend of mine turned 30 this year and it was decided that we would along with another friend, do a 7 day cruise from Singapore. Our cruise set sail through the Malacca Strait up into the Andnaman Sea, stopping off in Langkawi (Malaysia) Phuket, Krabi (Thailand) and Sabang (Indonesia). With also spending a bit of time in Singapore, either side of the cruise. All up I would be away for a whole 14 days and I would also be flying to Singapore and back. That’s an 8 hour flight one way!
I must confess, this trip sounded scary to me, but deep within I knew it was achievable for me. I had a bit of anxiety about this trip in the beginning, as my health had been playing up when I made the booking. But I was committed to seeing this through, especially for myself. Thankfully the health issues I was experiencing were not ME/CFS (Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome) related and towards the time of the cruise, I was ready and embracing this trip with open arms.

I won’t bore you with all the details…… but here’s a little summary of how I got on. I’ll leave the rest up to the holiday snaps, they speak for themselves!

The first few days were spent enjoying & exploring Singapore. Naturally I wasn’t able to see everything, but you never can see it all in just a couple of days. After spending a lot of our days walking around shopping, eating and exploring my legs were about to fall off. I had pushed things to the limit and if all the payback I was getting was from my legs, I’ll take it! Gardens by the bay are a must, we visited them at night, but I would definitely go back to see them during the day.

Next was time to board the cruise, by then I was needing a good rest. It’s hard work being a tourist! Thankfully the first day on the cruise was just a sailing at sea day. I was able to bounce back well.  I enjoyed the luxuries on the boat and had everything right at my fingertips. A few party nights here and there with a sneaky drink or two in between. Dancing the night away like I was a care free 18 year old again, that’s what it’s all about. Yep the old body pulled up well.
Day trips weren’t too hard, I opted for the easy options and that seemed to work out well. I was extremely surprised with how well I managed it all. I guess when you’re on holiday, you don’t have to worry about day to day things or anything else for that matter. The biggest worry is what to eat, there was so much food to choose from!

The last few nights of our trip were spent winding down in Bugis, Singapore. Enjoying the local sights and exploring the area, including visiting the Meomi cat cafe. Conveniently located across from our hotel.

This nears the end of my Singapore cruise adventure, I had a wonderful time and have proved to myself that my ME/CFS days are now more like a distant memory. Bring on the next adventure, I hear South America calling!!!

I’ll love and leave you with a few of my holiday snaps, enjoy!
Do you have any holidays planned? I would love to hear about them!!!

Much love

Lennae xxx

Sunrise view from our apartment in Singapore.

Sunrise view from our apartment in Singapore.

Playing tourist, heading down to gardens by the bay.

Playing tourist, heading down to gardens by the bay, Singapore.

Gardens by bay, Singapore.

Gardens by bay, Singapore.

Breakfast at the Meomi cat cafe, Singapore.

Breakfast at the Meomi cat cafe, Singapore.

Pacific Eden, in Sabang, Indonesia.

Pacific Eden, in Sabang, Indonesia.

Langkawi, Malaysia.

Langkawi, Malaysia.

Krabi, Thailand

Krabi, Thailand

Enjoying the beautiful sunset.

Enjoying the beautiful sunset.

Walking the plank.

Walking the plank.

Keep Trying!

It’s been a while since I’ve given an update on how I’m travelling and to be honest it’s been a bit of a bumpy past 6 weeks with my ME/CFS. I guess it should to be expected though, you should never under estimate the power of your chronic illness (especially when you don’t listen to your body). So here’s an update on my happenings.

I had been increasing my hours at work and I managed to get up to working 8 hours over 2 days a week. Excitement overload! I was working 4 hours a day, that’s half a day!

Being able to work again felt great, but working only 8 hours was starting to not be good enough. In my mind I wanted to be able to work more. My mind was racing well ahead to what I wanted to be doing, rather than what I should be doing. All I wanted to do was keep pushing and eventually I would be at my current goal of working 15 hours a week. In theory it sounded easy enough. I wanted to keep pushing myself to my limit and that meant that I wasn’t taking notice of the fact that I was going to push a little too hard and crash.

Well that happened, straight after I realised maybe I should just calm it down a bit. After pushing through a day at work, I struggled to recover back from it. I thought I would need one week off to rest, but that turned into five!

All I can say is lesson is learnt! It’s all well and good to push yourself, but sometimes you need to take a step back and listen to what your body is trying to tell you.

After 5 weeks off with lots of rest and time to reflect here’s what I learnt;

Patience. You will get to where you want to be eventually, it just takes time.

Stop comparing yourself to others. Don’t compare your beginning to someone else’s middle.

Be kind to yourself. We are our biggest critic of ourselves, how about giving yourself a kind compliment instead of beating yourself up all the time.

Listen to your body. Yes it does communicate with you, make sure you listen to it!

Don’t give up. No matter how much this situation may feel like it is dragging on, it won’t last forever so keep trying, you will get there!

On that note I went back to work last week and managed a couple of hours, it felt great to be back at it again. I’m back at the start but that’s ok, I know I will get to where I want to be eventually. It might not be today or tomorrow but it will happen.

Much love,

Lennae xxx

photo credit: Hope via photopin (license)

photo credit: Hope via photopin (license)

photo credit: quote #63 via photopin (license)

photo credit: quote #63 via photopin (license)

Back to Work!

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I have been lucky enough to have an employer that has stuck by me though the good and bad times of my chronic illness. During the harder times of my ME/CFS, I had a number of supportive phone calls from a lovely lady in the HR department. She would always reassure me that whenever I was ready, a return to work plan would be put in place for me to return back to work. There was never any pressure, just the simple message of we are here when your ready.

Over the months the thought of work seemed impossible. I work in customer service, the thought of dealing with people again sounded like hard work. I kept telling those thoughts in my head that it would happen one day.

18 months down the track and I have finally stepped back into the working world! Oh the feeling, the joy and excitement of returning back to work! To be back at work again is a major achievement!

It has been going pretty well, of course I have had some bad days that’s a given. But I have also had some great days at work. My hours have started off very slow and will be increasing gradually. I have currently just moved up to 3 hours a day, 2 days a week! Woohoo!!!

Being able to work again has given me a sense of normality. The social environment that work brings is wonderful. It definitely beats being stuck at home alone all day.

I am extremely thrilled to be working again!!!

I’m just taking each day as it comes, one day at a time!

Lennae xxx