Goal kicking 4 years on!

Photo by Farid Askerov on Unsplash

It occurred to me that I’ve just hit my ME/CFS anniversary and I think it’s safe to say that I’ve kicked it to the curb! This past year has been filled with a bit of goal kicking and it’s not stopping anytime soon! Yeooow!!!

Four years ago, I can still vividly remember how my health went downhill fast.  The first year was the hardest, I barely had wins and as much as I tried to keep positive it was hard.  I held onto goals and put up pictures of things that symbolised my goals. I convinced myself that I would achieve these goals one day…….even though at the time, it seemed hard to believe. I held onto the idea and kept it for when I needed it the most.

Finally, I have achieved a number of these goals. I am extremely proud, to say four years on I am celebrating and smashing my goals! The hard work has paid off and most of all, the illness is no longer ruling my world.

A huge victory is that I am heading to South America in a few days, yep you heard right!!! It’s literally days away. South America became a long-term goal of mine when I become unwell. Most of my close family and friends know this and probably got sick of me saying one day I’m going to go when I get better! Haha well that day has finally arrived and I am pinching myself! I really can’t believe it has arrived.

It is very random how it all came about, it happened to be in my very early days of my illness. At the time, the doctors still didn’t know what was wrong with me.  I was trying to keep positive throughout the whole ordeal and I decided to make an inspiration board of what I was going to do or work towards when I got well enough. The picture of Machu Picchu came to me, I had no desire to visit it before. But that image of Machu Picchu stuck with me and I thought to myself ” I’m going, when I’m well enough.”

And it’s been with me ever since.

City2surf is another big thing that I have been working towards, which I’m excitedly fit enough for. City2surf is happening in August which I am excited to be competing in the event and I have also been fundraising for it. The charity I have chosen to fundraise for is emerge, they are an Australian based charity that dedicates themselves to raising awareness and funds to research for ME/CFS.

Returning to work and working like a normal person would, was another big goal. DONE! This also includes other living “like a normal person” life goals again. DONE!

My next ass kicking goal will be a tough one and means heading back to school! Bring it on!

It’s not until you lose something, that really puts things and life into prospective for you.

Any way my friends it’s time for me to love and leave you, I need to go pack!

Can’t wait to tell you all about my South American adventure.

Much love

Lennae xxx

Photo by Abraham Osorio on Unsplash

ME Awareness 2017

Imagine one day you wake up and you can barely move from your bed. You try to lift your head but it feels too heavy, almost like you are trying to lift up a heavy rock.

Your cat is lying beside you and senses you are waking, he walks up along your body. Ow! You didn’t realise he was that heavy. His tiny paws digging into your body are so painful. As you try to pull yourself out of bed, you feel stiff, heavy and achy and your joints are sore. Your body feels like it has aged decades to your eighty’s.

As you rise you feel your head spin and your body struggle to hold its self-upright. A million thoughts start to overwhelm your head and you start to wonder why am I feeling so awful? You barely make it from the bedroom to the lounge. Your body feels like it has just run a marathon.

Maybe you’re coming down with something, like the actual flu….. Or maybe today is just an off day. But then the next day feels much the same, days then turn into weeks, then months then years.

Just like that you have gone from be a young, fit, healthy and capable human being into a weak, venerable, confused and incapable human being. You can barely leave the house, let alone look after yourself and your loved one has turned into your carer.

Your doctor and other doctors can’t explain it, won’t acknowledge it, or know about it but can’t help. Leaving you at a loss as to where and how it all went so wrong……

Wow that sounds horrible and depressing! That my friends is a small taste of what life with ME/CFS aka Myalgic Encephalomyelitis /Chronic Fatigue Syndrome is like.

Today is ME/CFS awareness day! As a yearly ritual I like to get on board and help promote awareness on our intentional day of May 12th (read previous posts for 2014, 2015 , 2016 here).

Sadly there are millions of people world wide that are currently suffering with this illness. Many sufferers are left house bound, some are even bed bound. The recovery with this illness can take years, even decades. Unfortunately there is still a lot to be learned and research to be done about ME/CFS. Some health professionals still believe it is all in the sufferers mind, as there is still a lot unknown about the illness. Crazy right!?

I suffered with this illness back in 2013 and become completely bed/house bound for years. It was a very isolating and debilitating experience to go through. Thankfully my health is in a much better place now.

For more information about ME/CFS or to find out how you can help check out the Australia ME/CFS website emerge.org.au.

I am extremely excited to be completing in City2surf this year and fundraising for ME/CFS. Funds donated are going to emerge, they are a wonderful advocate for ME/CFS sufferers. If you want to get behind me or share some love and support click here for my everyday hero page.

Thanks for reading, I hope you have a wonderful day!

Much Love,
Lennae xxx

 

 

Photo credit: a.m_banks- Instagram

 

Walk for ME!

Taking in the view.

 

Hello beautiful readers, I hope you’re all well!

Can you believe it’s May already? Where has the year gone?!

As some of you might be aware for a few years now I have been suffering with ME/CFS (Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome). My health is a lot better now and my days with ME/CFS feel like more of a distant memory, however May 12th is International awareness day. As we are approaching awareness day pretty quickly, I want to put it out there that I will be dedicating a huge goal of mine to raising awareness and fundraising for ME/CFS.

Back in 2012 I participated in City2Surf for the first time ever, l had a fantastic time and was eager to participate in the following years event. Unfortunately that year I became unwell with ME/CFS and haven’t been able to enter since.

Well friends, I’m extremely excited to announce that this year is the year, that I will be taking on this goal!  Exciting isn’t it! It’s been worth the wait! I have always vowed to myself that, when the day arrived I would dedicate/ fundraise my race to the Emerge charity to help fundraise for ME/CFS.

If you’re not familiar with City2Surf, let me tell you a little about it. It is a 14 km race from the Sydney CBD out to the famous Bondi beach. The event is held in August and usually attracts more than around 80,000 people, making it one the largest runs of its kind in the world. It is a fun but challenging event that is suitable for most people with a bit of a fitness level, whether you are entering for the competitive race or just for fun, dressing up is always optional. You can find all types of entertainment along the race, it truly is a fun morning out.

I am super thrilled to be entering this year, this has been something I have had my heart set on doing for a few years now. I have built up my strength day by day from being bed ridden to where I am today.

I have meet many wonderful people online, world wide who suffer with this illness. They have all helped make what was a very difficult journey a much happier and brighter one. This one’s for you team!!!

I have started an everyday hero page through the City2Surf website, this page is where you can join me on my journey. You can view my training that I will load up a couple of times a week, with my number one trainer Snowy.  I will also keep you posted on my Instagram, but for my everyday hero page click here. I would love for you all to pop over to my page, share it, donate or just say hi, Snowy and I would love the encouragement!

 

Much love

Lennae xxx

 

City2Surf 2012.

 

Bringing on 30 with Adventure!!!

Photo credit- Eagle rock adventures

Photo credit- Eagle rock adventures

 

Bringing in my 30th birthday like yeeoooooowwwwww!!!!

When I became unwell with ME/CFS aka Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (nearly 4 years ago), life as I knew it was no more and I was fighting for my health like I never knew I would have too. Fast forward to now and after a few years spent bed/ house bound, I am now pretty much well enough to live an active life at my normal pace.

So bringing in my up and coming 30th birthday with a bang, sounded like the only way to bring in a milestone birthday.

I’ve been pining over Machu Picchu, it’s the one thing that I have held onto and told myself I would do once I recovered from ME/CFS. I have hoped and planned to get there this year, the year I turned 30 and fortunately my hard work with my health has paid off. After months of planning, tantrums, talking myself out of it, then talking myself back into it.  I can confirm that myself and darling husband (bless him for putting up with this decision making process) booked for my birthday and recovery dream of course. My much awaited trip to Machu Picchu, in less than 5 months time!

Whoohoo, I am literally pinching myself!!!

Lets embrace adventure! My big goal is happening, so I am one happy lady. But come the day I turned 30 and the adventure didn’t stop there. Cameron took on board that adventure was on the cards, so he organised for us along with my younger brother to go canyoning.

Ummmmm……what’s canyoning? Yeh I had no idea! Let me tell you…….

Canyoning is an adventure sport where you endure a mixture of activities like abseiling, hiking, rock climbing, rock sliding and jumping through a water canyon.

Sounds a little extreme, climbing down waterfalls, jumping off rocks and plunging into fresh water holes and sliding down big rock surfaces!

Extreme? Maybe a little…..but fun? Absolutely!

We went with a Sydney based tour group called Eagle Rock adventures, they were wonderful guides. They fed us, were extremely helpful and kindly took a bunch of photos on our behalf as smartphones weren’t really ideal to take.

The canyon we ventured through was located in the Macquarie pass rain forest.  It was absolutely beautiful. I love rain forests and getting amongst nature is always good for the soul. We also saw bit of wildlife where we went, as we were off the beaten track. We saw a wallaby, huge lizards, frogs and a snake that was happily hanging out near the water keeping a close eye on us.

This adventure was an all day event, the weather was super hot, but the rain forest kept us nice and cool. The water was beautiful and fresh, I could have stayed in it all day.

I can honestly say it was so much fun, challenging and rewarding all at the same time. There’s nothing like staring down the rock face and feeling your heart racing as you think to yourself “OMG what the hell am I doing?! “This s**t’s way too high!”

Your adrenaline kicks in and then you start abseiling down the rock surface like a boss (or what you think’s like a boss). You’re only going snail pace, but hey your giving it a go and YOU’RE DOING IT and that’s all that matters my friends!!!

With that my friends, I will love and leave you. If you want to check out our Canyoning footage, check out the link below. GoPro was worn by Cameron!

Bye for now and embrace your inner adventure!!

Lennae xxx

 

 

Photo credit - Eagle rock adventures

Photo credit – Eagle rock adventures

 

South Coast Getaway

Culburra Beach

Culburra Beach

Over the Christmas holiday break, I was fortunate enough to spend some lovely time on the South Coast of NSW, in a small coastal town called Culburra beach. Culburra is located 18 km to the East of Nowra, in the Shoalhaven area or for all you Sydney-siders or those of you that aren’t very familiar with Australia it is 182 km’s south of Sydney.

Fortunately for us we travelled down a few days before Christmas and when we arrived we felt like we had the entire place to ourselves. The beaches were practically deserted, the streets were empty and all you could hear were birds  chirping and the ocean waves gently crashing. The supermarket and cafes were fairly empty, even come Christmas Eve. We left a few days after Christmas and that’s when Culburra started to experience the migration of Sydney-siders invading this secluded piece of paradise.

We shared this beautiful place with some of our family, including my in-laws from New Zealand. It was lovely to share this beautiful part of the world with them. We enjoyed many walks along the beach and in the national parks. We are very spoilt for choice with beaches and national parks to explore.  On one of our walks, the Abrahams Bosom track in Currarong we came across a snake just chilling in the middle of the walking track. Thankfully, a couple of people had just walked past Mr Snake and helped him peacefully make his own way back off the track.

We ventured down to the surrounding coastal towns including Currarong, Orient point and down to Jervis bay. We shopped in Huskisson and the other local shopping hubs including Berry and Nowra. Visited Hyam’s beach which has claimed to have the whitest sand in the world (according to the guinness book of records). It also has another claim to fame for all you Kim Kardashian fans, she did a photo shoot there when she visited Australia a few years ago.

During our stay down the coast we also got to witness the famous Sydney to Hobart yacht race. Binoculars were needed of course and I have to confess we were only able to see one boat, the rest were too far out to sea.

Overall it was a lovely getaway filled with new and happy memories.

Have you been on a getaway currently? I would love to hear about!

I’ll love and leave you with a few happy snaps!

Lennae xxx

Looking over Hyam's beach.

Looking over Hyam’s beach.

Merimbula wreck, Currarong.

Merimbula wreck, Currarong.

Honeysuckle beach, Currarong.

Honeysuckle beach, Currarong.

 

Fam Bam!

Fam Bam!

Snow enjoying Culburra Beach.

Snow enjoying Culburra Beach.

 

Sunset at Penguin head, Culburra.

Sunset at Penguin head, Culburra.

Wrapping up 2016 and Bringing on 2017!

Photo credit @a.m_banks- Instagram

Photo credit @a.m_banks- Instagram

Welcome to 2017….. Where on earth did 2016 go!!!

I know I’m a little late to the party, but I can’t help myself I love wrapping up a year that’s passed and looking forward to the beginnings of a year ahead! I don’t know about you guys, but a new year just brings a whole lot of exciting and endless possibilities!!!

Although I can’t say I have completely recovered from ME/CFS (Myalgic encephalomyelitis/ chronic fatigue syndrome) I am more functional and active than what I have been in a long time. 2016 was a good year for me, my health turned it up a notch and showed me that my days with ME/CFS are becoming more like it was all just a bad dream.

Throughout 2016 I did have a few issues with my health, but they ended up not being ME/CFS related. How good is that!
2016 showed me a normal and active life, that I am more than welcoming back. I was able to work my way up to working 15 hours a week and maintain that. I will increase the hours more at some stage, but right now I am happily enjoying this work life balance. I also enjoyed a bit of travelling, going interstate, as well as heading over to Singapore off on a cruise. I remember feeling on the cruise like I wasn’t a sick person (how amazing is that). I was also studying some of last year, however I did have to place my studies on hold. I hope to continue them at some stage, possibly in a years time. Putting my studies on hold allowed me time to complete my main goal of returning to work and also allowed me to focus more on my fitness. Which Snowy and I have been loving!

Anyway enough about 2016, we are now in 2017!!!

Whoohoo, bring it on!!!

This year one of my main goals that I will achieve, is dedicated to when I first became unwell. When I first became unwell in 2013, I could barely move. At the time all I could do was lay in bed or on the couch. I did a lot of soul searching and googling online about ME/CFS and came across mostly negative stories. This did not help my frame of mind, I needed something positive. I had no idea when I would get better or how long it would take. However I needed something to look forward to. I decided to make a vision board, it was something I hung on my wall, where I looked every day and helped when I wasn’t feeling the best (which at that stage was everyday). My vision board consisted of destinations that I wanted to visit and stuff that I wanted to be doing once I finally started to get better. The one thing that stuck out to me however was Machu Picchu. I have no idea why, it just did. I decided when I was finally well enough and able too I would go there someday. Thankfully my beautiful friends I am well enough to get my butt over to that amazing place and show ME/CFS who the boss is now!!!

To some it may not seem like a big deal, but to someone that has been suffering with a chronic illness it means having your life back. Suffering from a chronic illness is hard work, but recovering from one is even harder. Achieving your goals is rewarding, here’s to a year full of achieving your goals and setting new ones.

Have a happy 2017 my friends! I hope you all have a fantastic year ahead, sending lots of love, hugs, spoons and positive vibes your way.

Lennae xxx

Photo credit @a.m_banks- instagram

Photo credit @a.m_banks- instagram

Photo credit @a.m_banks- instagram

Photo credit @a.m_banks- instagram

Mr Spoons Adventures

Mr Spoon at Flagstaff hill park, Wollongong.

Mr Spoon at Flagstaff hill park, Wollongong (Photo credit: Instgram @a.m_banks).

Last month I was fortunate enough to be visited by the famous travelling Mr Spoon. He travelled all the way from Germany taking a couple of detours around Australia, before turning up on my door step.

You’re probably wondering who is Mr Spoon and what’s his story?  Well let me tell you!!!

Mr Spoon was created by the wonderful Theresa Laura at spoonsforhappniess.com.  She created him for the Spoonie community. His job is to help each person that receives him feel less alone while dealing with their illness and help them feel connected to a wonderful worldwide community.

Now you’re probably wondering what is a Spoonie?

A Spoonie is someone that suffers with a chronic illness, for more details read Christine Miserandino’s Spoon Theory.  Mr Spoon is helping raise awareness worldwide for people that suffer with a chronic illness. As you may know I have suffered with ME/CFS (Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome) for over 3 years. My health is a lot better, however I was bed ridden at one point. For some spoonies they can be house bound or even bed bound. This means basic activities can be almost impossible for some.  Knowing that Mr Spoon was travelling around to help with raising awareness, I was more than happy to help and support Mr Spoon on his travels. Anything that helps to raise awareness for any type of chronic illness is always welcomed.

Now that we have covered the important facts I would love to share my adventures with Mr Spoon with you all! Mr Spoon ended up staying with me for over a month.  Our first adventure was our road trip down the coast to Melbourne. Mr Spoon decided to hide in the back seat on the first day, but we managed to get a lot of sightseeing pictures the following day. We looked for whales in Eden, NSW, crossed over the border to Victoria, and headed for Melbourne while hugging the coast as much as possible (for more details about our road trip click here).

After our big road trip Mr Spoon and I were happy to chill out during the rest of our time together.  Before I was due to forward him on, I decided to set him up with a bit of a photo shoot. Mr Spoon loved every moment of it, he is a bit of a model and I’m pretty sure he would win Australia’s next top model if he wanted to hang around and apply.

After a lot of beach therapy and way too many photos, Mr Spoon headed off via Australia post to see the next wonderful Spoonie.

If you would like to have Mr Spoon come visit you, feel free to contact Theresa Laura at spoonsforhappniess.com.

Thank you for visiting Mr Spoon and keep doing what you doing!

 

Lennae xxx

 

Hanging on tight to Buddha.

Hanging on tight to Buddha (Photo credit: Instgram @a.m_banks).

Looking over City Beach, Wollongong

Looking over City Beach, Wollongong (Photo credit: Instgram @a.m_banks).

Wollongong Harbour

Wollongong Harbour (Photo credit: Instgram @a.m_banks).

 

Whale watching in Eden, NSW.

Whale watching in Eden, NSW.

Mr Spoon takes on Melbourne!

Mr Spoon takes on Melbourne!