ME Awareness 2017

Imagine one day you wake up and you can barely move from your bed. You try to lift your head but it feels too heavy, almost like you are trying to lift up a heavy rock.

Your cat is lying beside you and senses you are waking, he walks up along your body. Ow! You didn’t realise he was that heavy. His tiny paws digging into your body are so painful. As you try to pull yourself out of bed, you feel stiff, heavy and achy and your joints are sore. Your body feels like it has aged decades to your eighty’s.

As you rise you feel your head spin and your body struggle to hold its self-upright. A million thoughts start to overwhelm your head and you start to wonder why am I feeling so awful? You barely make it from the bedroom to the lounge. Your body feels like it has just run a marathon.

Maybe you’re coming down with something, like the actual flu….. Or maybe today is just an off day. But then the next day feels much the same, days then turn into weeks, then months then years.

Just like that you have gone from be a young, fit, healthy and capable human being into a weak, venerable, confused and incapable human being. You can barely leave the house, let alone look after yourself and your loved one has turned into your carer.

Your doctor and other doctors can’t explain it, won’t acknowledge it, or know about it but can’t help. Leaving you at a loss as to where and how it all went so wrong……

Wow that sounds horrible and depressing! That my friends is a small taste of what life with ME/CFS aka Myalgic Encephalomyelitis /Chronic Fatigue Syndrome is like.

Today is ME/CFS awareness day! As a yearly ritual I like to get on board and help promote awareness on our intentional day of May 12th (read previous posts for 2014, 2015 , 2016 here).

Sadly there are millions of people world wide that are currently suffering with this illness. Many sufferers are left house bound, some are even bed bound. The recovery with this illness can take years, even decades. Unfortunately there is still a lot to be learned and research to be done about ME/CFS. Some health professionals still believe it is all in the sufferers mind, as there is still a lot unknown about the illness. Crazy right!?

I suffered with this illness back in 2013 and become completely bed/house bound for years. It was a very isolating and debilitating experience to go through. Thankfully my health is in a much better place now.

For more information about ME/CFS or to find out how you can help check out the Australia ME/CFS website emerge.org.au.

I am extremely excited to be completing in City2surf this year and fundraising for ME/CFS. Funds donated are going to emerge, they are a wonderful advocate for ME/CFS sufferers. If you want to get behind me or share some love and support click here for my everyday hero page.

Thanks for reading, I hope you have a wonderful day!

Much Love,
Lennae xxx

 

 

Photo credit: a.m_banks- Instagram

 

18 thoughts on “ME Awareness 2017

  1. Hey Lennae,
    Your description of this is so true you actually took me back to when i was that bad that i couldnt get out of bed and it hurt so much when the cat walks across your body. Thankyou for reminding me how lucky i am to be leading my life again when so many of these sufferers are not.

    Good luck with your walk, im sure you will achieve it and more.

    Best Wishes
    Donna Banks

    Liked by 1 person

  2. I have read so many blog post on Mental Awareness lately and it has taught me a lot. I was not familiar with the condition and as you say, as long as you haven’t lived it, you can’t really understand it (which applies also for street harassment but that’s another debate), but reading posts helps to understand better! thanks for sharing! xx corinne

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  3. I have never heard of this illness but it sounds really bad and I am sure it’s very difficult not only fo the patient but the caretaker too. You are doing a great job by volunteering for this. Kudos.

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  4. I’ve never heard of ME/CFS before. I mean if heard of CFS but this sounds much more debilitating. I’m so sorry you had to deal with it, but I’m glad to read that you are better and well enough to compete.

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  5. This sounds awful, I really have a lot of empathy for those who suffer from this. My friend developed chronic fatigue in high school and would fall asleep at lunch/in class 😦

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  6. I have never heard of this before myself. I think it is important to share with others though. I know there are a lot of people who have illnesses that feel alone.

    Like

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