It’s ME/CFS (Myalgic encephalomyelitis/Chronic fatigue syndrome) awareness day. As a yearly ritual I wanted to get on board and help raise awareness about the illness (see previous years posts here ME Awareness 2015 & ME Awareness 2014). As most of my readers know I have been living with this illness for the past few years. It is a debilitating illness that still needs a lot of research. The cause of the illness is still unknown. There is also no treatment plan for this illness and some sufferers take many years to recover. Unfortunately some sufferers do not recover.
I’ve decided to write about some of the crazy symptoms, that I have experienced with ME/CFS. I hope this helps you understand that this illness is more than one symptom and is never straight forward for any sufferer. In fact most sufferers experience a number of different symptoms and each persons experience with the illness is different.
Are you ready, here we go………
Food intolerance/ Sensitive stomach/ Digestive issues
When your stomach decides to pack a tantrum and tell you that it does not like eating the food you like any more. What? How? Signalling back to you with stomach cramps, nausea, bloating, aches and pains or just sending it straight out! Nasty business this, I personally had it that bad that I went and had a food intolerance test done. Turns out I learnt I had a mild intolerance to two foods I causally ate, but not the rest!!! What the hell!!!
Oh yes that horrible feeling when your heart starts beating rapidly, you feel a hot and cold sweat breaking out and your mind races into a crazy panic state. Your breath feels shallow and is this even real or am I dreaming? I mean where the hell did this come from!!! Fear of things that never consumed my mind before, I mean why are these thoughts clogging up my brain!!! Where has this all come from? Oh Hi Anxiety, you can go now!
When your brain feels like it has a thick layer of fog over it. Yep sounds strange but it is a real thing. Causes confusion, self-doubt, lack of focus or concentration and makes you do and say strange things. Strange things that your dog would appreciate, like being fed twice for breakfast. Or when you start repeating yourself and asking the same things over and over, because you don’t remember asking them just a minute ago. Oh dear!!!
Muscle aches and joint pain
Yep that’s right! When your body feels like you just ran a marathon, but all you did was walk 20 steps. Muscle and joint pain from moving too much, as well as from not moving enough! What!? I know it blows my mind too, but it is a real thing. If you try and push yourself a little with any type of extra activity, it can result in extreme muscle or joint pain and then it’s back to bed for days. Making you feel like you physically got hit by a bus. If you don’t move your body enough your body ceases up and becomes stiff resulting in muscle and joint pain. Even the weather can influence this symptom. Aches and pains in the cooler weather as well as in the humid weather.
A really weird symptom that can cause extreme sensitivity to all types of things like noise, people and their energy, smells, sunlight, cleaning products, cosmetics, skin care products. How this works is when you may feel like you are having a reaction to it. You might feel instant fatigue, feel itchy or heavy. Smells may irritate you, you can’t even be in the same room with someone if they’re wearing perfume. Even cosmetics or skin care can feel heavy and irritate the skin.
I could go on with the list of crazy symptoms, here’s a few more just so you get the idea; fever, memory loss, heart palpitations, muscle weakness, dizziness, headaches/ migraines, insomnia. They all come and go with this illness, but there is honestly too many to list and everybody that suffers with this illness suffers very differently.
I hope this has helped you learn a bit more about ME/CFS and has given you a little more insight of some of the symptom struggles sufferers go through.
Unfortunately there is still a lot to be learned and research to be done about ME/CFS. Some health professionals still believe it is all in the sufferers mind, as there is still a lot unknown about the illness. For more information about ME/CFS or to find out how you can help check out the Australia ME/CFS website emerge.org.au.
Thanks for reading, I hope you have a wonderful day!