May 12th is international Myalgic Encephalomyelitis (ME) awareness day. For me this is a day about raising awareness for my illness. I’m obligated to raise some kind of awareness for my illness, even if I can’t get out and do a lot.
A great way to celebrate and raise awareness for this cause is to wear something blue or purple, have or host a high tea party or donate to the cause. Places around the world are lighting up buildings and homes blue or purple for ME. Some groups are hosting high tea fundraising events. I would love to be able to get out and about, or do a crazy fundraiser, however the reality is I can only get out when I’m well enough and that isn’t as often as I would like. Being around people or busy environments can be extremely challenging as well.
I’m determined to do my bit! Whether I end up having a small high tea party at home or getting dressed up in blue, I will definitely be donating to raise funds for research into my illness. I’m also participating in a blog bombing event with other sufferers that blog. We are all sharing our stories and hash tagging #May12BlogBomb. Keep an eye out on Social media or feel free to join us! If you decide to join in make sure you use one of these awareness hashtags on social media #tea4me #mecfs #spoonies #lightupthenightoz #may12th #meawareness.
People suffer from this illness all over the world, here’s a few figures to show you just how many of us sufferers there are out there;
Australia – 150,000
New Zealand – 10,000 – 20,000
UK – 250,000
USA – over 1 million
The cause of this illness is still unknown by medical professionals. This is why we need to raise awareness and funds to find out more. This illness can happen to anyone, even you! Please help me raise awareness for this horrible illness.
Bye for now
Lennae
xxx
Statistics are from the following websites; https://www.southerncross.co.nz/AboutTheGroup/HealthResources/MedicalLibrary/tabid/178/vw/1/ItemID/196/Chronic-fatigue-syndrome-Tapanui-flu.aspx http://sacfs.asn.au/about/general_info/fact_sheet.htm http://www.meassociation.org.uk/about/what-is-mecfs/ http://chronicfatigue.about.com/od/whatischronicfatigue/a/cfsfactsheet.htm
Lennae's World 
It’s frustrating we can’t do more, but it’s so great how many people are doing what they can even though they are so poorly, it’s overwhelming how determined PWME to do what they can! The last few years they lit the Niagara falls up blue for the cause, which is amazing!
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Wow that is amazing! Yes it is frustrating that we can’t do more , but it does feel good to be able write about it and try and help raise awareness. 🙂 xxx
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